To be just four years old and in the certain knowledge that you’ll go blind by the time you are a teenager or at the latest in your early twenties. From the earliest age, that’s the future for Vicky.
She is one of those with Leber Congenital Amaurosis (LCA) a severe form of degenerative eye disease. With no cure, it is turning bright futures dark.
The condition affects thousands in the UK and hundreds of thousands worldwide.